Made by patients, for patients
A free, independent, not-for-profit club for anyone affected by cardiomyopathy, anywhere in the world. Started by someone living with the condition, and shaped by members.
Ed Worthington, who lives with cardiomyopathy, with a patient advisory group from different countries. We are not part of any health service.
Medical wording is reviewed by a cardiomyopathy specialist nurse or cardiologist before it goes live. Each page shows when it was last reviewed.
No account needed. Letters, medicines and diary entries are not stored. Family history and genetic results are never stored.
We write our own short summaries and always link to the original story. We never copy whole articles.
Call your local emergency number straight away if you have:
Elsewhere, use your country's emergency number.
Join our patient advisory group, share your story, or tell us what would help.